I recently had a session with a family that I met through Inspiration through Art. This family and this little boy touched my heart in so many ways. I was so impressed by this little guy's strength and spirit and was in awe of this mother's and family's strength to support him in every way that they can. This little hero that you are about to meet, inspired me in so many ways.
His story: William was born on July 21, 2009 at 9:52pm. Mom wasn't feeling as much fetal movement as normal, so they called the doctor and she sent them to the hospital. They did an emergency c-section and delivered a 3lb. 13oz., 16 inch long baby boy who was in respiratory distress. They had no clue the sadness they would feel when they had to leave the hospital without their baby, the sadness that comes with seeing their baby hooked up to tubes and wires, the sadness one feels not being able to hold their baby because he's so sick that the stimulation from his own parents touch does more harm than that good. They had no clue that for the first week they would only be able to enter their child's hospital room wearing gowns and gloves and how well versed they would become in all of the medical terminology that you hear in the NICU and that medical terminology would become their life. During their 4 weeks in the NICU they were told that William has an intraventricular hemorrhage and also periventricular leukomalacia, both are fancy words for damage to their baby's brain.
William was diagnosed with cerebral palsy when he was a year old. He has cortical visual impairment, so he is now legally blind. This month, William received a g-tube to help him eat, as he is unable to eat enough to gain weight which makes him failure to thrive.
On a positive note, William is happy. H-A-P-P-Y! He doesn't know that he is different, he enjoys doing therapy 5 days a week and loves his family. Those are things that they know are most important in his life.
Seriously, this family is awesome!
William is supported and encouraged in every step of his journey thanks to these amazing parents.
Most of all he is loved.
His two sisters provide him with a lot of laughter.
They love him so much!
William, I am so happy to have had the chance to photograph you. You are one awesome little guy.
Your smile and those beautiful eyes, brighten everything!
Thank you, William! It was such a pleasure to meet you!
xo, Moi
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